14:29:29 From :Judson to Everyone: If you have questions for our speakers, after the meeting, just email Pat at leader@dcpnsupport.org 14:31:50 From :Judson to Everyone: How do clients communicate with caregivers in “real” time to work out changing situations? 14:32:14 From :Judson to Everyone: How do you escalate issues that inevitably happen? 14:33:07 From :Judson to Everyone: Is Seniors Helping Seniors caregivers vetted, bonded, and insured? 14:33:56 From :Judson to Everyone: Can we request individuals request a specific caregiver that we like? 14:34:42 From :Judson to Everyone: What happens when a caregiver doesn’t work out? 14:35:12 From :Judson to Everyone: What about language issues? Translation? 14:48:39 From R.H. to Everyone: What are your costs per hour? Is a minimum hours required? 15:03:33 From J.H. to Everyone: I am a new member from the Detroit area and am 61. I am not in need o the service being discussed. I have used Visiting Angels in Detroit for my father about 5 years ago, and am familiar with the service being presented. 15:20:19 From Mike Foxworth to Everyone: my mother lived in Medford Lees 15:24:47 From Pat Gualtieri to Everyone: Our website: PNSNetwork.org. Click on JOIN to guarantee receiving our monthly invite and Zoom link 15:24:55 From :Judson to James & Flo Stanley(Direct Message): Penn Medicine – doctors name is Baer. Highly recommended says Barry K. 15:25:47 From Glenn Ribotsky to everyone: https://www.pennmedicine.org/providers/profile/michael-baer 15:27:27 From B.B. to Everyone: I am looking for Neuro-ophthalmologist. My wife had one in McLean but has retired. Any referrals would be appreciated. 15:29:09 From Pat Gualtieri to Everyone: If you think you did not receive the invite check that it’s not in your Spam folder. Use “tech@dcpnsupport.org” as your search term 15:30:39 From J.H. to Everyone: Phil Bettendorf 15:32:33 From Glenn Ribotsky to Everyone: https://neuromuscular.wustl.edu/antibody/mprotein.htm https://www.drugs.com/mtm/enfortumab-vedotin.html 15:41:39 From Glenn Ribotsky to Everyone: Here is the list of Western Neuropathy Association online support groups for May: May 13, 2nd Saturday Support Group 11:00am-1:00pm PST/1:00pm-3:00pm CST, Meeting ID: 856 7106 1474, Passcode: 114963 Host – Katherine Stenzel, klstenzel@hotmail.com May 17, 3rd Wednesday Support Group 10:00am-noon PST/12:00pm-2:00pm CST, Meeting ID: 833 4473 0364 / Passcode: 341654 Host – Glenn Ribotsky, glenntaj@yahoo.com May 27, 4th Saturday – Open Discussion 11:00am-1:00pm PST/1:00pm-3:00pm CST, Meeting ID: 851 7949 9276 / Passcode: 159827 Host – John Phillips, johnphillips.wna@gmail.com 15:43:08 From Pat Gualtieri to Everyone: Fr chemo induced PN; Support Group that meets on the first Wednesday of the month at 1:00 (ET). The leader is Cindy Tofthagen: tofthagen.Cindy@mayo.edu 15:43:34 From Brenda Cheadle to Everyone: My daughter’s oncologist in Dallas had her hands and feet bagged in ice during infusions when one of her types of chemo was known to result in PN. She had chemo for over 6 months – plus surgery, radiation- still in treatment 20 months later- and did not get PN. 15:48:00 From B.B. to Everyone: OK Thanks. I will try that 15:48:18 From helaine greenberg to Everyone: Reacted to “My daughter’s oncolo…” with 👍 15:49:54 From Glenn Ribotsky to Everyone: Also, some of the people who treat multiple sclerosis may have extensive training in neuro-ophthalmology. They often have considerable experience with optic neurology as a symptom of MS. 15:51:17 From :Judson to James & Flo Stanley(Direct Message): Diet is very important. 15:57:52 From :Judson to James & Flo Stanley(Direct Message): We need volunteers to help with sharing your PN experience and we are forming a task force to UPGRADE our capabilities. 15:58:08 From :Judson to James & Flo Stanley(Direct Message): Overtime starts at 4pm. 16:11:18 From Rebecca Hotop to Everyone: Bye all…. 16:13:04 From P.B. to Everyone: Thank you everyone. Great group. I need to drop. Appreciate the insight. Phil Bettendorf / Detroit