2017-July-21 –
Our Pot Luck party at Peter’s house: we had fun and discussed a proposed approach to increasing and maintaining public support for progress on PN.  Mike Foxworth, in his role of disturber-of-the-peace, made a presentation on something he (rather grandly) calls <The Neuropathy Network Plan PDF>. The key ideas:

  • Our most critical need is awareness and coordination
  • Neuropathy is an element of MANY diverse diseases, 
  • Every disease is different and many (but not all) are powerfully supported by their own patient communities, charities, support groups and research projects.
  • The “Every Disease for Itself” approach allows extraordinary inefficiencies when the fundamentals of neuropathy are common to all.
  • A single foundation (like the Diabetes Association or the American Cancer Society) to incorporate all these neuropathy-related diseases may be impractical and unneeded.
  • The proposed solution is a “Coordination Center” with rules that encourage direction and order in what is now a rather chaotic environment.  

Leave a Reply

Your email address will not be published. Required fields are marked *

Scroll to Top