We want to send a mass mailing to membership to urge members.
Here is Diva’s draft.
Dear Senator Kaine,
Thank you so much for your bill concerning long COVID. The tingling you discussed is something I’ve experienced as well, not because of long COVID but because of a condition called Peripheral Neuropathy (PN), which is woefully under-researched and affects ~30 million people in the U.S. It has no cure. I volunteer with an organization called the Peripheral Neuropathy Support Network, which has a directory of resources you can find here: https://pnsnetwork.org/resource-flashcards-table-of-contents/ for your own use. If there’s anything you could do to promote PN research, we would really appreciate it. A true advocate is something we have lacked for decades; we in the PN community would be so grateful for your support.