Chat from the May 4 PNSN meeting
14:20:35 From GH to Everyone:
Put a donate button on everything you publish.
14:32:29 From Judson Vaughn to Everyone:
I have bought a Liberty Lift Standing Aid. It is very helpful. Especially having someone help you out of a low sofa or lounge chair.
14:48:16 From Pat Gualtieri to Everyone:
Amtrak Northeast Regional: Boston-Providence/Springfield-New York-Washington-Roanoke/Richmond-Norfolk/Newport News-Virginia Beach. Amtrak.com (Northeast Regional = Silver Meteor)
14:52:53 From Mike Foxworth to Everyone:
judy likes the nitro rollator with bigger wheels and better brakes
14:53:40 From Mike Foxworth to Everyone:
Judy, can you explain more how you get your nitro rollator in and out of the car without lifting it?
Are you in or near Reston? It would be a lot easier to show you than try to explain in writing?
15:03:06 From Cynthia Colton-Reichler to Everyone:
Many places offer rental of e-bikes. You may explore the possibility of renting one in Hong Kong.
15:08:44 From Glenn Ribotsky to Everyone:
https://en.wikipedia.org/wiki/Cinco_de_Mayo
15:09:31 From Glenn Ribotsky to Everyone:
Today of course is Star Wars Day–as in May the 4th be with you.
15:12:39 From Judson Vaughn to Everyone:
Helaine, blessings this week.
15:13:30 From Judson Vaughn to Everyone:
Asking for SUPPORT from this group is VERY APPROPRIATE.
15:14:26 From HZ to Everyone:
Replying to “Getting SUPPORT from…”
Thanks Jud.
15:15:15 From Judson Vaughn to Everyone:
Replying to “Getting SUPPORT from…”
😀
15:21:41 From Glenn Ribotsky to Everyone:
https://my.clevelandclinic.org/health/body/23173-cartilage
15:32:34 From Glenn Ribotsky to Everyone:
https://weillcornell.org/news/what-you-need-to-know-about-low-dose-naltrexone
15:33:39 From HG to Everyone:
Used LDN up to 4.5 mg.for 6-9 mos. I didn’t have pain and I did have numbness and LDN didn’t work for my numbness..
15:34:48 From Glenn Ribotsky to Everyone:
Not surprising–I haven’t seen much evidence of LDN for helping numbness.
15:35:22 From Judson Vaughn to Everyone:
https://en.wikipedia.org/wiki/Low-dose_naltrexone
15:36:00 From Judson Vaughn to Everyone:
https://www.drugs.com/medical-answers/low-dose-naltrexone-ldn-3570335
15:36:42 From Judson Vaughn to Everyone:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6313374
15:39:22 From Judson Vaughn to Everyone:
https://www.drugs.com/lyrica.html
15:43:16 From Glenn Ribotsky to Everyone:
Speaking of neuropathy scams, here’s a webinar Pam Hart, WNA President, presented on them: https://www.youtube.com/watch?v=koIrHMAnLqY
15:46:33 From Judson Vaughn to Everyone:
OUR WEBSITE: https://pnsnetwork.org/
15:46:40 From Judson Vaughn to Everyone:
EMAIL: Pat can be reached at leader@dcpnsupport.org.
15:46:44 From Glenn Ribotsky to Everyone:
WNA 2nd Wednesday Chemo-Induced Peripheral Neuropathy (CIPN) Support Group
May 8, 2024 04:00 PM Central Time (US and Canada)
Join Zoom Meeting
https://us06web.zoom.us/j/83055383243?pwd=TjTWQUKB9zZcDVsTFn4I0ooX1YBwzY.1
Meeting ID: 830 5538 3243
Passcode: 396320
15:47:00 From Judson Vaughn to Everyone:
EVENT CALENDAR: type https://pnsnetwork.org/calendar/
15:47:11 From Judson Vaughn to Everyone:
To join PNSN, type https://pnsnetwork.org/about-pn/join-dcpn/
15:47:19 From Judson Vaughn to Everyone:
FOOTNOTES: type https://pnsnetwork.org/footnotes-2024/
15:47:22 From Glenn Ribotsky to Everyone:
Western Neuropathy Association (WNA)
2nd Saturday Peripheral Neuropathy Support Group
May 11, 2024 11am Pacific, 1pm Central and 2pm Eastern.
Join Zoom Meeting
https://us06web.zoom.us/j/85671061474?pwd=V3B3VzdpVlFZSVpJaEJpdzE0azNjZz09
Meeting ID: 856 7106 1474, Passcode: 114963
15:47:30 From Judson Vaughn to Everyone:
NEWBIE GUIDE: type https://pnsnetwork.org/neuropathy-newbie-guide/
15:47:40 From Judson Vaughn to Everyone:
RESOURCES: type https://pnsnetwork.org/resource-flashcards-table-of-contents/
15:49:55 From Glenn Ribotsky to Everyone:
We are absolutely looking for all sorts of talents for that support group leaders consortium–no talent too small.
15:55:15 From Judson Vaughn to Everyone:
Bill,we need to reset your Zoom to make sure you can see all attendees (even the ones who attend by cellphone)
15:56:31 From Judson Vaughn to Everyone:
The problem with the link is easily solved. I just have to manually create a link in Mailchimp, instead of assuming that everyone’s control automatically set it.
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