Exit Survey Results for October

10/05/2024 – Here are some notes from the October exit survey. These are presented anonymously for the purpose of idea sharing.

What did you takeaway/learn from today’s meeting?

It takes effort to reduce symptoms of PN.

Ideas about exercise

Discussion of B vitamins is of interest.  Also, I hadn’t thought of genetic testing.  I have children and grandchildren who might like to know if their mother or grandmother may have passed along PN

Like minded people who are connected through a terrible disease that no one ever wanted

two pages of notes with so much information, websites, other groups. I found everyones experiences with this disorder interesting and informative. Just hearing from others is great.

Learn Slack, 

Sophistication of process probably more than our group would want to pursue.

Wide variety of concerns of different people.

Traveling

Keep trying!

Speaker was very informative on many topics

lots info to help travel

Don’t be afraid to travel.  Be open about what yoe needs are.  Options and help are available.  

cool devices to help get around. I’m not in a wheelchair yet, but it seems to be coming. And have two bad shoulders. 

great support and so much valuable and inspiring discussion

I liked Craig’s positive attitude about life but I’m afraid most if not all my traveling is in my past.  I’ve visited every state except AK & HI, and most of the Canadian Provinces.

Always learn something useful – great meeting.

specific information on diagnosis and treatments

Insights into travel with a wheel chair.

What topics would you like to see addressed in future meetings?

Best exercise/stretching for PN

Nutritional suggestions for coping with neuropathy.  For instance, I have been taking magnesium on the presumption that it’s good for the nerves. 

Cannabis usage 

Supplements found beneficial

Recipes for better nutrition 

More info on the Bemer and wave therapy

1. What formal components should be in our informal structure, 

2. What Leader support topics would are we wanting to talk about – build a list 

3.. How to leverage Slack 4 the leader support meetings

How to help new neuropathy sufferers.

How to improve muscle control with neuropathy in hands

hand controls

Balance exercises for elderly people with neuropaty.