June 2015 Meeting Notes

2015-Jun-4 Dr. Amy Stone, a neurologist with the Neurology Center of Fairfax Virginia, led a Q&A <NotesPDF>*

2014 Discussed a 9-page alphabetical list/evaluation of PN “treatments” (some legit, some probably not) tried by members of the Western Neuropathy Association <TreatmentsPDF>* <WNA Website>

2014 Presentation on the Virginia Assistative Technology program and some of the equipment available <PDF>*

December 2013 Meeting Notes

2013-Dec-15
Hopkins researcher and scientific advisor to the Foundation for Peripheral Neuropathy, Dr. Hoke, presented analysis of research and the orphan status of our disease <Presentation PDF> (UPDATE:  Dr. Hoke also made a presentation at the March 2018 Patient Conference .)

2013-Oct-12  Hopkins’ Dr. Cornblath, a leading PN researcher, discussed PN and had Q&A <Notes PDF>*.

April 2014 Meeting Notes

2012-Apr-14
Georgetown’s Dr. Sirdofsky discussed PN and had Q&A <Notes PDF>

December 2012 Meeting Notes

2011-Dec-15
NeuroNOVA neurologist Dr. Zillox’s analysis of treatment options for PN and related pain <PresentationPDF>*

Some other useful links 

– Three introductory descriptions of PN from Cleveland Clinic, Neuropathy Associates, and NY Times <PDF>

– Some suggested exercises <PDF> and massage techniques <PDF>

– Presentation on Drop Foot exercises and NEMS <PDF>

– An often cited New York Times Magazine article on PN pain. <My Pain, My Brain (This article is behind a pay wall)>