Join Our Network

The Peripheral Neuropathy Support Network (PNSN) is an established community support organization of local groups. Most of our members are from the Mid-Atlantic USA but we are not limited by geography. We invite you to join.

Here are some typical questions we hear a lot.

Who makes up PNSN?
We are ordinary folks who have Peripheral Neuropathy. We are not physicians, researchers, or specialists, although many of us are trying to become as knowledgeable about this disease as we can be. Some of us are care givers, spouses, and children of neuropathy patients.

We try to exchange information with each other about treatments and lifestyle changes that enhance our life and ways of managing pain. We listen to “subject matter” experts (guest speakers) who speak to us on various topics from Acupuncture to coping technologies to vitamin supplements.

We operate this website, which tries to be a collection of helpful information for anyone who is interested.

When do you meet?
We usually meet monthly (or so). During COVID-19 isolation, we are mostly meeting through Zoom, a videoconferencing platform. Meetings are being held during the daytime and nighttime, on weekends and during the week, to help accommodate different schedules. Meetings might feature a speaker or panel, but we try to allocate a lot of time for personal discussion. See our calendar for a current schedule of meeting days and times through the network.

Is this just for people in the U.S. Mid-Atlantic?
No. Because we meet via Zoom, anyone anywhere can participate. Zoom offers a connection through the internet to get on-line. Or, every call offers a regular phone line for audio-only participation.

Of course, personal face-to-face support is our goal. Retirement villages are made up of folks who live in the same “bubble’. This may allow for personal sessions where people can exchange information and talk about their experience.

NOTE: It is imperative that you JOIN our membership list to receive invitations to events.

How do I get involved?
We are always looking for new members. Just fill in our JOIN! form to get on our mailing list. This will enable you to know about our meetings and receive

We are always looking for volunteers, who make the group possible. Even if no have an interest but no skill set, we can train you. See our volunteers page for tasks that need doing.

Why join our group?
PN is a very complicated condition. It exhibits different symptoms for different people, has disparate variety of causes, and an ongoing array of “cures” and practices that may or may not work.

The medical community is not well-versed in Neuropathy and medical staff may have varying degrees of responses to emerging research. We have found that, even though Neuropathy is a pervasive disease, affecting over 3% of the population, many physicians are not knowledgable about its causes and treatments.Various treatments work for different people. Talking together in our group (in between doctor visits) helps us keep up with the growing body of knowledge that is emerging.

We have found that the earlier you can get a firm diagnosis and start treating your symptoms, the better you can forestall its implications.

Join the network today! It’s free.