Managing Neuropathy is a journey. We believe that part of that journey is learning all you can about the disease. The Resources Directory on this site covers a lot of ground in this respect. Mostly, we link to resources from others around the web, including the Foundation for Peripheral Neuropathy, Johns Hopkins, NIH, etc. We’ve […]
Types of Neuropathy Read More »
Have you ever wondered whether you’ve found a miracle cure for your neuropathy, or if you’re just an unwitting victim of another snake oil salesman? How can you interpret the promising headlines in a magazine article versus the more tempered claims of the original research study? What evidence is enough evidence to ensure a new
Sorting Out The Snake Oil Read More »
Lots of our groups are meeting exclusively on Zoom these days. Aside from the benefits of social distancing, we’ve found out that a major benefit of Zoom is that it helps minimize mobility issues and lessens the burden of travel (sometimes at night). Zoom is a very popular platform for meeting remotely, but if you
How To Get On Zoom For The First Time Read More »
Jamal Hill suffers from Charcot-Marie-Tooth, a form of Neuropathy that is considered hereditary. But he didn’t let that stop him for qualifying as a Paralympian swimmer. Read his inspiring story in this month’s issue of Brain and Life magazine. https://www.brainandlife.org/articles/swimmer-charcot-marie-tooth-disease-paralympian?utm_source=Informz&utm_medium=Email&utm_campaign=22-BL&utm_content=Feb-Mar-A
Swimmer with Charcot-Marie-Tooth Finds His Dream Read More »
Dr. David D. Clarke’s February 5th presentation about “The Mind-Body Approach to Chronic Pain”, is now posted for your viewing. It is a review of his work and findings regarding the connection between the mind and the body. And, for our audience, the possible connection between central (brain) pain and peripheral nerves that we usually associate with
Dr, Clarke’s Presentation Now Online Read More »
Yesterday, we posted a video from Bob and Brad that showed us how to survive a fall. Once you find yourself on the floor, then what? Today, this video shows you how to safely get back up.
Getting Back Up After a Fall Read More »
On the Calgary Neuropathy Association website, they are building a list of actions, substances, and practices that can help reduce pain and improve quality of life for those of us with PN. The list is a work in progress, but there are already some good tips at https://calgaryneuropathy.com/category/100-things/.
100+ Things That Can Help Neuropathy Read More »
One of the consequences of loss of balance is that the risk of falling goes way up. Not only does falling threaten injury to wrists, knees, back, and head, but the chance of hitting your head on a hard surface, such as in a kitchen or bathroom, can have devastating consequences. Knowing how to reduce
The Pittsburgh area Peripheral Neuropathy group will meet Wednesday, February 16. The Bethesda/Chevy Chase group meets the next night, on February 17. Both are Zoom meetings. Check the calendar for details.
Pittsburgh group meets Feb. 16, Bethedsa Feb. 17 Read More »
The topic for our February 5th meeting will be “The Mind-Body Approach to Chronic Pain” with David Clarke, MD, president of the Psychophysiologic Disorders Association as our speaker. He is the author of the best selling book They Can’t Find Anything Wrong. Our topic was inspired by an October 17, 2021, article in The Washington Post titled Chronic Pain’s Secret Off Switch.
Dr. Clarke presents Saturday on Mind & Body Read More »
