Many of us suffer from pain, from annoying to excruciating episodes. On the PN Resources podcast, CJ and De discussed the idea of pain acceptance. Not blindly accepting pain, but not aggressively increasing dosage every time our Neuropathy raises its ugly head. A guest speaker offers some ways to cope. To hear this podcast, plus […]
Pain Acceptance – What does it mean? Read More »
We are pleased to announce that the PNSN has achieved 501(c)(3) tax-exempt status as a public charity. The effective date is September 18, 2021, so any contributions that you made to the PNSN after that date are now tax-exempt on your federal tax return.
Message from the PN Support Group of Bethesda/Chevy Chase, MD.: Thank you to the many who attended the initial Peripheral Neuropathy Support Group of Bethesda/Chevy Chase on 11/18/21. We hope you found it informative. A number of you joined our second, open discussion session, via Zoom, on 12/16/21. We appreciated hearing from several members about
B/CC PN Support Group Read More »
Our speaker for the November meeting of the Metro DC Area Peripheral Neuropathy Support Group was Dr. Brett McCray, assistant professor of neurology at Johns Hopkins Medical Center. Dr. McCray’s research seeks to understand and treat peripheral neuropathy with a particular focus on hereditary neuropathy and Charcot-Marie-Tooth disease (CMT). He believes that some of the
What is being done to minimize the burden of peripheral neuropathy (PN) on patients, their families and society? What can be done to improve both primary care standards for PN and medical school education about the prevention and later the progression of the disease? Dr. Ahmet Hoke, Professor of Neurology and Director of the Neuromuscular
Hereditary Neuropathy On September 30, The Foundation for Peripheral Neuropathy (FPN) hosted Brett McCray, M.D., PhD, and Christy Smith, Sc.M., C.G.C., who presented insights into Hereditary Neuropathy and Genetic Testing. See the presentation here.
Hereditary Neuropathy Read More »
Pittsburgh Group adds Zoom September 15, 2021 – Tonight, the Peripheral Neuropathy Support Network (PNSN) helped the North Huntington (Pittsburgh) group hold its first Zoom videoconference meeting, but the circumstances were quite unusual. The North Huntington group is about 10 years old, and had always met in person. Planners, lead by Bill Wilshire, had planned
Pittsburgh meeting Sept 15 Read More »
What topics would you like to see addressed by experts or considered for discussion in future meetings? We’ve listed some sample topics below, but you may have better ideas. Here are several: • latest advancements in pain control• shoe shopping• neurologist/podiatrist update on technologies, medications• acupuncturist/ reflexologist/hypnotist• nutrition, supplements, and eating well• automotive hand controls•
Summary: PN is uncomfortable. Virtually every PN patient has discomfort or pain. This reflects the standard pattern: discomfort, possibly substantial, while PN silently destroys our ability to stand. A substantial minority of patients report major problems with pain. To many of them pain is the primary problem, not the degradation that destroys balance. Many have
Loss of Full Life: Pain (A work in progress) Read More »
I want to live to be 100 or more. How can I do that? Living to 100 is hard. Peripheral Neuropathy (PN) is chasing me down from behind. Could looking around help? I think of Eve and Billy. Eve was struck by MS in her 30s, with several small children. When she died, 60 years
Reaching for 100 – Eve and Billy Read More »
