Summary: PN is uncomfortable. Virtually every PN patient has discomfort or pain. This reflects the standard pattern: discomfort, possibly substantial, while PN silently destroys our ability to stand. A substantial minority of patients report major problems with pain. To many of them pain is the primary problem, not the degradation that destroys balance. Many have […]
Loss of Full Life: Pain (A work in progress) Read More »
I want to live to be 100 or more. How can I do that? Living to 100 is hard. Peripheral Neuropathy (PN) is chasing me down from behind. Could looking around help? I think of Eve and Billy. Eve was struck by MS in her 30s, with several small children. When she died, 60 years
Reaching for 100 – Eve and Billy Read More »
Overcoming PN’s Unique Support Group Barrier By Mike Foxworth Peripheral Neuropathy (PN) is a massive problem for our country. It rivals Alzheimer’s disease in complexity and cost. Yet all attempts to confront it on the scale it merits have been met with meager responses. The last few years have revealed some exciting research developments. Those
Overcoming PN’s Unique Support Group Barrier Read More »
These are the documents we are using for our preliminary meeting with the folks who are helping us make plans for 2021 & 2022 Our Scope of Work Document link to comment Link to edit Context Document: Overcoming PN’s Unique Support Group Barrier Link to Comment Link to Edit Link to Blog Post Presentation: Neuropathy
PMDoS 2021 – Project Management Day of Service Read More »
Carolyn Hax is an advice columnist for the Washington Post. On June 22, she posted a question and response about use of a wheelchair from a reader named “Invisible Disability”. (Note: I’ve put the link to the online copy at the end of this post. You may need to be a subscriber to view it.)
Don’t Let Your Pride Hold You Back Read More »
Topic Interest Survey At our July 2019 picnice, we asked party goers to pause long enough to fill out a survey about their topic and speaker preferences. More topics were added during the discussion. We apologize for omissions and overlaps in the topic list. Topics marked with * were added during the discussion We used
What’s Relevant to Members Read More »
Mike Foxworth’s second preliminary take on our survey: A sample of 19 is still small, but interesting trends seem apparent. There is plenty of pain apparent at our our PN Support group meetings AND in these responses. But these results still suggest that PN related MUSCLE WEAKNESS, with its associated movement limitations and physical danger,
Results of Our Recent Survey Read More »
We got some management help in January The Problem: Our group has steadily expanded. We have focused on improving the relevance of our meetings while trying to help all those who contact us via phone or email. We’ve had more speakers and better information. We would like to be better at what we do, but it’s been hard
Getting Some Outside Help Read More »
Research suggests that exercise slows the progression of PN. But only if it is REGULAR exercise. We are far more likely to work out regularly if we enjoy it. Exercise can be hard to do. Where might joy be found? A story about a mis-interpreted cancer study suggests one location. My wife and I like
Integrating Home Exercise in PN Treatment integrating-home-exercise Posted by Mike Foxworth on October 29, 2018 Customizing effective exercise for your HOME environment is not well integrated into normal PN treatment. Because PN saps strength, Physical Therapy (PT) prescriptions for strengthening and balance exercise are common, even if the central role of exercise in PN is rarely
Integrating Home Exercise in PN treatment Read More »
