Carolyn Hax is an advice columnist for the Washington Post. On June 22, she posted a question and response about use of a wheelchair from a reader named “Invisible Disability”. (Note: I’ve put the link to the online copy at the end of this post. You may need to be a subscriber to view it.) […]
Don’t Let Your Pride Hold You Back Read More »
Topic Interest Survey At our July 2019 picnice, we asked party goers to pause long enough to fill out a survey about their topic and speaker preferences. More topics were added during the discussion. We apologize for omissions and overlaps in the topic list. Topics marked with * were added during the discussion We used
What’s Relevant to Members Read More »
Mike Foxworth’s second preliminary take on our survey: A sample of 19 is still small, but interesting trends seem apparent. There is plenty of pain apparent at our our PN Support group meetings AND in these responses. But these results still suggest that PN related MUSCLE WEAKNESS, with its associated movement limitations and physical danger,
Results of Our Recent Survey Read More »
We got some management help in January The Problem: Our group has steadily expanded. We have focused on improving the relevance of our meetings while trying to help all those who contact us via phone or email. We’ve had more speakers and better information. We would like to be better at what we do, but it’s been hard
Getting Some Outside Help Read More »
Research suggests that exercise slows the progression of PN. But only if it is REGULAR exercise. We are far more likely to work out regularly if we enjoy it. Exercise can be hard to do. Where might joy be found? A story about a mis-interpreted cancer study suggests one location. My wife and I like
Our Last Meeting: 2018-Nov-3 We had a normal support group meeting in Annandale. 20 in attendance with three new patients and their caregivers. Highlight: a harrowing tale of poor medical care using narrowly focused specialists. Our member was in great pain, with a variety of problems. Being loaded, over time, by her neurologists with increasingly
Chronic Pain: The Mind on Fire integrating-home-exercise Posted by Mike Foxworth on November 28, 2017 at 9:00 AM Dr. Gary Kaplan of the Kaplan Clinic in McLean VA, gave a powerful appeal for a wider approach to care, especially for patients for whom pain is a significant issue. He used diagrams from a book he was working
Chronic Pain: The Mind on Fire Read More »
