Unlike Alsheimer’s or Parkinson’s disease, which seems to have a lot more information available to educate people, PN has fewer sources from which to draw. Following a diagnosis, medical professionals sometimes offer patients little more than pain medication before sending them on their way. There is so much more to be learned and practiced, especially […]
PN Support Groups Offer Particular Ostacles Read More »
Dr. Gregory Maassen, FPN supporter and e-bike enthusiast, completed his 4,500 mile transcontinental e-bike tour across the Lincoln Highway on Tuesday, August 2, in San Francisco! We are deeply grateful to Gregory for helping raise awareness and much-needed funds for peripheral neuropathy. Read about Gregory’s PN diagnosis and e-bike tour here. If you would like
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Finding resources on the web can be difficult and confusing. That’s why Glenn Ribotsky, Western Neuropathy Association, is going to walk us through some websites and other resources that he’s found very useful. Click the link below for details and how to register for this FREE webinar.
Essential PN Websites Read More »
Download your copy of the PNSN brochure. It explains some of the causes and treatments of PN and tells more about your group.
Here is a glossary of medical terms related to Peripheral Neuropathy. This is created and maintained by the Center for Peripheral Neuropathy at the University of Chicago. https://peripheralneuropathycenter.uchicago.edu/learnaboutpn/glossary/
The Foundation for Peripheral Neuropathy offered a webinar on Small Fiber Neuropathy conducted by Amro Stino, MD on July 11th. Links to Dr. Stino’s slides, a transcript and follow-up Q&A can be found on the Foundation’s website: https://www.foundationforpn.org/webinar-small-fiber-neuropathy-with-amro-stino-md/.
Small Fiber Webinar Held Monday, July 11, 2022 Read More »
The Global Burden of Polyneuropathy FPN’s Executive Director Lindsay Colbert was recently in attendance for a presentation by Melissa Elafros, MD, PhD, of the University of Michigan; Michelle Kvalsund, DO, MS, of the University of Zambia; and Brian Callahan MD, MS, of the University of Michigan at the Peripheral Nerve Society Annual Meeting in Miami. FPN shares a
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Want to tell your pain story? The U.S. Pain Foundation is surveying people with chronic pain in an effort to its storybook. Would you like to participate? If so, go here and tell your story. Thanks to Steve and Brenda for bringing this to our attention.
Want to tell your pain story? Read More »
The podcast Glass Half Full featured a recent episode on Neuropathy. This podcast is hosted by Leslie Krongold, whose theme is to make lemonade from life’s lemonade. Guest Glenn Ribotsky, is a Board member with the Western Neuropathy Association. He shares his dramatic initiation as a patient into the world of peripheral neuropathy. He advocates and offers support to others
“Patient Turned Advocate” Read More »
One of the things that came up at the Pittsburgh meeting was a service that offers free help with chores around the house. Need a light bulb changed? Or a minor repair tended to? Perhaps transportation to the doctor and back? Then call Open Your Heart To a Senior. Depending upon schedule and availability, a
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