Making the Most of a Doctor Visit
Make the Most of Your Next Doctor Visit A nurse practitioner at a past meeting gave us a list of things that could improve your next doctor visit.
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blog
Our views about the world of PN
Footnotes 2023
The purpose of Footnotes is to alert our members to current news and information of potential interest to patients and their caregivers. It will be included in our monthly meeting invitation and posted on our website: pnsnetwork.org January 2023 February 2023 March 2023 April 2023 May 2023 June 2023 January 2023 February 2023 March 2023
Physical Activity for Older People
Physical Activity for Older People Webinar: Physical Activity for Older People. This Zoom event will focus on “the benefits of physical activity, how to become more active, and equipment and technology that can help with getting more activity in your daily routine.” Wednesday, January 25, 2023 2:15-3:40 PM (ET) Offered by AARP and the Osher
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Pad Your Landing Spot
2022/12/22 (10 minute read) Pad Your Landing Spot Ever considered installing EVA Foam floor pads in your home? What price beauty? Our friend Barbara has PN. Recently, she fell. Her body hit the beautiful tile floors that she had just used to make her house look so nice. See the first photo. The injuries took
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Value of water aerobics
I have to share that taking WaterAerobics, Aquasize…whatever ‘water’ classes anyone can take will help their neuropathy and so much else!!! I’m now teaching WaterAerobics!!! I’m 74, have a Stent in my Left Decending Artery, Spinal Stenosis, PN in both feet, broke my back first of May (from a fall in my home) and tore
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Supplements Taken Seriously
Mike Foxworth, 9/30/2022, 10-minute read People with Peripheral Neuropathy, like people with any chronic health problem, have their antenna up to detect news or claims that something can help them. This makes them high-value targets for those ready to sell stuff. Supplements are a good example. “If you take supplements, take them seriously.” “These are
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Footnotes 2022
The purpose of Footnotes is to alert our members to current news and information of potential interest to patients and their caregivers. It will be included in our monthly meeting invitation and posted on our website: pnsnetwork.org December 2022 November 2022 October 2022 September 2022 August 2022 August 2022 Blog Entries on the Foundation
“Patient Turned Advocate”
The podcast Glass Half Full featured a recent episode on Neuropathy. This podcast is hosted by Leslie Krongold, whose theme is to make lemonade from life’s lemonade. Guest Glenn Ribotsky, is a Board member with the Western Neuropathy Association. He shares his dramatic initiation as a patient into the world of peripheral neuropathy. He advocates and offers support to others
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Swimmer with Charcot-Marie-Tooth Finds His Dream
Jamal Hill suffers from Charcot-Marie-Tooth, a form of Neuropathy that is considered hereditary. But he didn’t let that stop him for qualifying as a Paralympian swimmer. Read his inspiring story in this month’s issue of Brain and Life magazine. https://www.brainandlife.org/articles/swimmer-charcot-marie-tooth-disease-paralympian?utm_source=Informz&utm_medium=Email&utm_campaign=22-BL&utm_content=Feb-Mar-A
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Loss of Full Life: Pain (A work in progress)
Summary: PN is uncomfortable. Virtually every PN patient has discomfort or pain. This reflects the standard pattern: discomfort, possibly substantial, while PN silently destroys our ability to stand. A substantial minority of patients report major problems with pain. To many of them pain is the primary problem, not the degradation that destroys balance. Many have
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