Our views about the world of PN
The purpose of Footnotes is to alert our members to current news and information of potential interest to patients and their caregivers. It will be included in our monthly meeting invitation and posted on our website: pnsnetwork.org December 2022 November 2022 October 2022 September 2022 August 2022 August 2022 Blog Entries on the Foundation […]
The podcast Glass Half Full featured a recent episode on Neuropathy. This podcast is hosted by Leslie Krongold, whose theme is to make lemonade from life’s lemonade. Guest Glenn Ribotsky, is a Board member with the Western Neuropathy Association. He shares his dramatic initiation as a patient into the world of peripheral neuropathy. He advocates and offers support to others
“Patient Turned Advocate” Read More »
Jamal Hill suffers from Charcot-Marie-Tooth, a form of Neuropathy that is considered hereditary. But he didn’t let that stop him for qualifying as a Paralympian swimmer. Read his inspiring story in this month’s issue of Brain and Life magazine. https://www.brainandlife.org/articles/swimmer-charcot-marie-tooth-disease-paralympian?utm_source=Informz&utm_medium=Email&utm_campaign=22-BL&utm_content=Feb-Mar-A
Swimmer with Charcot-Marie-Tooth Finds His Dream Read More »
Summary: PN is uncomfortable. Virtually every PN patient has discomfort or pain. This reflects the standard pattern: discomfort, possibly substantial, while PN silently destroys our ability to stand. A substantial minority of patients report major problems with pain. To many of them pain is the primary problem, not the degradation that destroys balance. Many have
Loss of Full Life: Pain (A work in progress) Read More »
I want to live to be 100 or more. How can I do that? Living to 100 is hard. Peripheral Neuropathy (PN) is chasing me down from behind. Could looking around help? I think of Eve and Billy. Eve was struck by MS in her 30s, with several small children. When she died, 60 years
Reaching for 100 – Eve and Billy Read More »
Overcoming PN’s Unique Support Group Barrier By Mike Foxworth Peripheral Neuropathy (PN) is a massive problem for our country. It rivals Alzheimer’s disease in complexity and cost. Yet all attempts to confront it on the scale it merits have been met with meager responses. The last few years have revealed some exciting research developments. Those
Overcoming PN’s Unique Support Group Barrier Read More »
Carolyn Hax is an advice columnist for the Washington Post. On June 22, she posted a question and response about use of a wheelchair from a reader named “Invisible Disability”. (Note: I’ve put the link to the online copy at the end of this post. You may need to be a subscriber to view it.)
Don’t Let Your Pride Hold You Back Read More »
Topic Interest Survey At our July 2019 picnice, we asked party goers to pause long enough to fill out a survey about their topic and speaker preferences. More topics were added during the discussion. We apologize for omissions and overlaps in the topic list. Topics marked with * were added during the discussion We used
What’s Relevant to Members Read More »
