blog – Peripheral Neuropathy Support Network

Swimmer with Charcot-Marie-Tooth Finds His Dream

By Judson Vaughn / Leave a Comment / blog

Jamal Hill suffers from Charcot-Marie-Tooth, a form of Neuropathy that is considered hereditary. But he didn’t let that stop him for qualifying as a Paralympian swimmer. Read his inspiring story in this month’s issue of Brain and Life magazine. https://www.brainandlife.org/articles/swimmer-charcot-marie-tooth-disease-paralympian?utm_source=Informz&utm_medium=Email&utm_campaign=22-BL&utm_content=Feb-Mar-A

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Loss of Full Life: Pain (A work in progress)

By Mike Foxworth / Leave a Comment / blog, research, support

Summary: PN is uncomfortable. Virtually every PN patient has discomfort or pain. This reflects the standard pattern: discomfort, possibly substantial, while PN silently destroys our ability to stand. A substantial minority of patients report major problems with pain. To many of them pain is the primary problem, not the degradation that destroys balance. Many have

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Reaching for 100 – Eve and Billy

By Mike Foxworth / Leave a Comment / blog, Uncategorized

I want to live to be 100 or more. How can I do that? Living to 100 is hard. Peripheral Neuropathy (PN) is chasing me down from behind. Could looking around help? I think of Eve and Billy. Eve was struck by MS in her 30s, with several small children. When she died, 60 years

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Overcoming PN’s Unique Support Group Barrier

By Mike Foxworth / 5 Comments / blog, research

Overcoming PN’s Unique Support Group Barrier By Mike Foxworth Peripheral Neuropathy (PN) is a massive problem for our country. It rivals Alzheimer’s disease in complexity and cost. Yet all attempts to confront it on the scale it merits have been met with meager responses. The last few years have revealed some exciting research developments. Those

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Don’t Let Your Pride Hold You Back

By Mike Foxworth / Leave a Comment / blog

Carolyn Hax is an advice columnist for the Washington Post. On June 22, she posted a question and response about use of a wheelchair from a reader named “Invisible Disability”. (Note: I’ve put the link to the online copy at the end of this post. You may need to be a subscriber to view it.)

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What’s Relevant to Members

By Mike Foxworth / Leave a Comment / blog, research

Topic Interest Survey At our July 2019 picnice, we asked party goers to pause long enough to fill out a survey about their topic and speaker preferences. More topics were added during the discussion. We apologize for omissions and overlaps in the topic list. Topics marked with * were added during the discussion We used

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