Meetings, in-person and Zoom, webinars,
MAY 1 – Gregg Maassen, who is riding his eBike from Washington, DC to San Francisco, CA, is just outside Adel (Dallas County), Iowa. His battery is powered at about 50 percent. So far, he’s raised more than $41,000 for the Foundation for Peripheral Neuropathy and he’s not even halfway across the country. For more […]
Where Is Greg Maassen Today? Read More »
In March, Chuck and Donna Barnhart presented a national tour of their experiences hiking the U.S. National Park System with Neuropathy. Their biographical sketches are here. Here is the video recording of the meeting. Here are chat notes: 13:42:15 From Peripheral Neuropathy Support Network to Everyone: PNSNetwork.orgFacebook – On Your Feet 13:43:03 From Peripheral Neuropathy
Meeting Notes – March 7, 2022 Read More »
Join us Saturday for a regular ZOOM meeting of the Peripheral Neuropathy Support Network from 2pm-4pm Two Exciting Events on April 2, 2022: DC Sendoff of Dr. Greg Maassen on his eBike Journey (9:00 am) and Presentation by Chuck and Donna Barnhart on Hiking Our National Park Trails (2:00 pm) Our April monthly meeting of the
April 2 PNSN meeting Read More »
Dr. Greg Maassen, an avid bicyclist and PN sufferer, will launch a solo bicycle trip from Fletcher’s Boathouse (District of Columbia) on Saturday. He is headed for the West Coast, following the Eisenhower – Lincoln Highway Transcontinental Cycling Route, a new bike path connecting San Francisco and Washington, D.C. The trip will take about four
eBiker Launches Cross Country Journey To Focus Attention On PN Read More »
Lots of our groups are meeting exclusively on Zoom these days. Aside from the benefits of social distancing, we’ve found out that a major benefit of Zoom is that it helps minimize mobility issues and lessens the burden of travel (sometimes at night). Zoom is a very popular platform for meeting remotely, but if you
How To Get On Zoom For The First Time Read More »
The February 5th meeting addressed “The Mind-Body Approach to Chronic Pain” with David Clarke, MD. The video presentation is here. David D. Clarke, MD is President of the Psychophysiologic Disorders Association. He is also Assistant Director at the Center for Ethics and Clinical Assistant Professor of Gastroenterology Emeritus both at Oregon Health & Science University (OHSU) in Portland, Oregon,
Meeting Notes February 5, 2022 Read More »
Our speaker for the November meeting of the Metro DC Area Peripheral Neuropathy Support Group was Dr. Brett McCray, assistant professor of neurology at Johns Hopkins Medical Center. Dr. McCray’s research seeks to understand and treat peripheral neuropathy with a particular focus on hereditary neuropathy and Charcot-Marie-Tooth disease (CMT). He believes that some of the
What is being done to minimize the burden of peripheral neuropathy (PN) on patients, their families and society? What can be done to improve both primary care standards for PN and medical school education about the prevention and later the progression of the disease? Dr. Ahmet Hoke, Professor of Neurology and Director of the Neuromuscular
Hereditary Neuropathy On September 30, The Foundation for Peripheral Neuropathy (FPN) hosted Brett McCray, M.D., PhD, and Christy Smith, Sc.M., C.G.C., who presented insights into Hereditary Neuropathy and Genetic Testing. See the presentation here.
Hereditary Neuropathy Read More »
Pittsburgh Group adds Zoom September 15, 2021 – Tonight, the Peripheral Neuropathy Support Network (PNSN) helped the North Huntington (Pittsburgh) group hold its first Zoom videoconference meeting, but the circumstances were quite unusual. The North Huntington group is about 10 years old, and had always met in person. Planners, lead by Bill Wilshire, had planned
Pittsburgh meeting Sept 15 Read More »
