Items related to evolving clinical advancements in PN innovations
What is being done to minimize the burden of peripheral neuropathy (PN) on patients, their families and society? What can be done to improve both primary care standards for PN and medical school education about the prevention and later the progression of the disease? Dr. Ahmet Hoke, Professor of Neurology and Director of the Neuromuscular […]
June 5, 2021 Meeting: Survey Results and General Discussion Peripheral Neuropathy Support Group Watch there entire Zoom meeting here. Purpose of Meeting: The purpose of this meeting is two-fold: 1) to present and discuss the initial findings of the recent Member Survey 2) To provide
2021 June Meeting Survey Results Read More »
Hereditary Neuropathy On September 30, The Foundation for Peripheral Neuropathy (FPN) hosted Brett McCray, M.D., PhD, and Christy Smith, Sc.M., C.G.C., who presented insights into Hereditary Neuropathy and Genetic Testing. See the presentation here.
Hereditary Neuropathy Read More »
Summary: PN is uncomfortable. Virtually every PN patient has discomfort or pain. This reflects the standard pattern: discomfort, possibly substantial, while PN silently destroys our ability to stand. A substantial minority of patients report major problems with pain. To many of them pain is the primary problem, not the degradation that destroys balance. Many have
Loss of Full Life: Pain (A work in progress) Read More »
Overcoming PN’s Unique Support Group Barrier By Mike Foxworth Peripheral Neuropathy (PN) is a massive problem for our country. It rivals Alzheimer’s disease in complexity and cost. Yet all attempts to confront it on the scale it merits have been met with meager responses. The last few years have revealed some exciting research developments. Those
Overcoming PN’s Unique Support Group Barrier Read More »
Topic Interest Survey At our July 2019 picnice, we asked party goers to pause long enough to fill out a survey about their topic and speaker preferences. More topics were added during the discussion. We apologize for omissions and overlaps in the topic list. Topics marked with * were added during the discussion We used
What’s Relevant to Members Read More »
Mike Foxworth’s second preliminary take on our survey: A sample of 19 is still small, but interesting trends seem apparent. There is plenty of pain apparent at our our PN Support group meetings AND in these responses. But these results still suggest that PN related MUSCLE WEAKNESS, with its associated movement limitations and physical danger,
Results of Our Recent Survey Read More »
We got some management help in January The Problem: Our group has steadily expanded. We have focused on improving the relevance of our meetings while trying to help all those who contact us via phone or email. We’ve had more speakers and better information. We would like to be better at what we do, but it’s been hard
Getting Some Outside Help Read More »
Chronic Pain: The Mind on Fire integrating-home-exercise Posted by Mike Foxworth on November 28, 2017 at 9:00 AM Dr. Gary Kaplan of the Kaplan Clinic in McLean VA, gave a powerful appeal for a wider approach to care, especially for patients for whom pain is a significant issue. He used diagrams from a book he was working
Chronic Pain: The Mind on Fire Read More »
