Unlike Alsheimer’s or Parkinson’s disease, which seems to have a lot more information available to educate people, PN has fewer sources from which to draw. Following a diagnosis, medical professionals sometimes offer patients little more than pain medication before sending them on their way. There is so much more to be learned and practiced, especially
PN Support Groups Offer Particular Ostacles Read More »
Finding resources on the web can be difficult and confusing. That’s why Glenn Ribotsky, Western Neuropathy Association, is going to walk us through some websites and other resources that he’s found very useful. Click the link below for details and how to register for this FREE webinar.
Essential PN Websites Read More »
Here is a glossary of medical terms related to Peripheral Neuropathy. This is created and maintained by the Center for Peripheral Neuropathy at the University of Chicago. https://peripheralneuropathycenter.uchicago.edu/learnaboutpn/glossary/
The Global Burden of Polyneuropathy FPN’s Executive Director Lindsay Colbert was recently in attendance for a presentation by Melissa Elafros, MD, PhD, of the University of Michigan; Michelle Kvalsund, DO, MS, of the University of Zambia; and Brian Callahan MD, MS, of the University of Michigan at the Peripheral Nerve Society Annual Meeting in Miami. FPN shares a
The Global Burden of Polyneuropathy Read More »
Want to tell your pain story? The U.S. Pain Foundation is surveying people with chronic pain in an effort to its storybook. Would you like to participate? If so, go here and tell your story. Thanks to Steve and Brenda for bringing this to our attention.
Want to tell your pain story? Read More »
At some point, some PN patients may have to give up driving. Numbness and pain in hands and feet may prevent a person from being a safe driver. One option to remain mobile is hand controls for your vehicle. Equipment can be retrofitted into most vehicles but the process is not simple or cheap. A
Automotive Hand Controls Read More »
On March 31, the Foundation for Peripheral Neuropathy held a discussion of PN health and lifestyles, featuring PN sufferers from around the country. Our own Diva Parekh was one of them. See the complete discussion at https://www.foundationforpn.org/webinar-patient-roundtable/.
Most of us spend a lot of time trying to separate the scams from legitimately helpful PN treatments. It’s not easy. And the result can beat lot off time and money wasted. Kristy Townsend, Foundation for Peripheral Neuropathy board member, recently gave a presentation on using “A Critical Eye For Vetting (Neuropathy) Medical Claims“. Townsend
Wouldn’t it be great to have an expert tell you how they spot medical scammers? Read More »
Managing Neuropathy is a journey. We believe that part of that journey is learning all you can about the disease. The Resources Directory on this site covers a lot of ground in this respect. Mostly, we link to resources from others around the web, including the Foundation for Peripheral Neuropathy, Johns Hopkins, NIH, etc. We’ve
Types of Neuropathy Read More »
Have you ever wondered whether you’ve found a miracle cure for your neuropathy, or if you’re just an unwitting victim of another snake oil salesman? How can you interpret the promising headlines in a magazine article versus the more tempered claims of the original research study? What evidence is enough evidence to ensure a new
Sorting Out The Snake Oil Read More »
