2017-July-21 –
Our Pot Luck party at Peter’s house: we had fun and discussed a proposed approach to increasing and maintaining public support for progress on PN. Mike Foxworth, in his role of disturber-of-the-peace, made a presentation on something he (rather grandly) calls <The Neuropathy Network Plan PDF>. The key ideas:
- Our most critical need is awareness and coordination
- Neuropathy is an element of MANY diverse diseases,
- Every disease is different and many (but not all) are powerfully supported by their own patient communities, charities, support groups and research projects.
- The “Every Disease for Itself” approach allows extraordinary inefficiencies when the fundamentals of neuropathy are common to all.
- A single foundation (like the Diabetes Association or the American Cancer Society) to incorporate all these neuropathy-related diseases may be impractical and unneeded.
- The proposed solution is a “Coordination Center” with rules that encourage direction and order in what is now a rather chaotic environment.