2017-Jun-1 – Our June 3rd Meeting that wasn’t: Ever wonder why PN research progress is SO SLOW? Other than being the least-known, wide-spread, big-impact health problem in the US and having only tiny amounts of research funding, it also suffers from severe vagueness in tracking patient progress. Dr.Ted Burns, a Neurology researcher from UVa, has been helping to lead a multi-university project to implement a simple, cheap-to-use, but experimentally validated tool that YOU (the patient) and THEY (the doctors) can use to track progress (or lack thereof) as YOU try various treatments.  Unfortunately, Dr. Burns became ill and was unable to come. But we talked about it anyway. We hope to reschedule. In any case:

• Checkout/print & fill out the “tool”; their Quality of Life form
  
• Or look at our (totally unauthorized) multi-date version, suitable for refrigerator posting to track your changes. We tried to induce some High School students to write a Smartphone app to keep track (for “free”), but failed – turns out that the exercise was “too simple” for a college student project and we never managed to coral a high school student to do it.
  
• Read the research paper [OK, it’s a bit dense] or My highlights

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