Frequently Asked Questions
The DC area group generally meets the first Saturday of the month. Click on the Calendar page for a speaker list or topics.
Peripheral Neuropathy (PN) is a progressive, life-long, sometimes painful, disease that damages or kills peripheral nerves. These are the longest nerves in the body, reaching from our brain to our feet, toes, legs and hands. They allow us to feel sensation, control our muscles, as well as manage involuntary body functions, such as heart rate and digestion.
When someone says “I have PN,” it is usually this lower body neuropathy or common PN. Its symptoms typically become initially detectible as the sensory nerves in the feet degrade. That is the point when tests can detect it.
Most other types are somewhat rare. Generally, the rare ones are much more difficult to diagnose. When someone says “it’s only in my hands” or “it only affects one side” or shoulder or face, it is probably uncommon PN. In most of those cases, the systems involved are MUCH more complex so the diagnosis challenge is far bigger.
Some PN accompanies diabetes, hearing loss, and Parkinson’s. In other cases, the cause remains unknown (idiopathic). Thousands of people across the country suffer from PN–often undiagnosed. Our support group offers information and support through monthly meetings, helpful speakers, and this website.
Here’s what the Cleveland Clinic says:
“Some cases of neuropathy can be easily treated and sometimes cured. Not all neuropathies can be cured, however. In these cases, treatment is aimed at controlling and managing symptoms and preventing further nerve damage.”
The PNSN support group is a volunteer group of people who suffer from Peripheral Neuropathy, and those who care for them. The group meets monthly via Zoom and is open to anyone regardless of where you live. We support one another through conversation and recommedations that help ease PN pain.
We also have about nine subject matter experts per year in the areas of medications, physical therapy, assistive devices, advocacy, etc. We cooperate with the Foundation for Peripheral Neuropathy.