Footnotes
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Issue 7 – March 16, 2021
Upcoming Webinars
“Ask the Expert: Managing Peripheral Neuropathy AND a Pandemic”
The Foundation for Peripheral Neuropathy welcomes Dr. Shanna Patterson for a special webinar to answer YOUR questions on Peripheral Neuropathy, with particular emphasis on how COVID-19 may affect patients with peripheral neuropathy. Join us for some first-hand answers to your questions.
Thursday, April 1, 2021
2:00 – 3:00 p.m. ET
1:00 – 2:00 p.m. CT
12:00 – 1:00 p.m. MT
11:00 a.m. – 12 p.m. PT
Please click here to register.
From the Facebook Page: Peripheral Neuropathy Success Stories
| Zoom with Lainie Ishbia Description Lainie Ishbia, MSW is a mom, wife, licensed therapist, blogger, fashionista and disability and empowerment speaker. She wears leg braces and struggles with buttons and everyday fine motor tasks , due to a slowly progressive neuromuscular disorder called Charcot-Marie-Tooth Disorder. Lainie is passionate about helping women with invisible physical disabilities look & feel their best. She created a lifestyle and fashion blog called Trend-Able, to give her Perfectly Imperfect followers tools, ideas, and inspiration for living their best lives. Time Mar 18, 2021 07:00 PM in Eastern Time (US and Canada) Register on the PN Success Stories FB page. |
Research Links
The Medical Literature page of the Western Neuropathy Association site website features current research information. It is edited by Dr. Thomas Donovan who specializes in tracking PN research.
Here is one possible study of interest:
“Evidence for Dietary Agmatine Sulfate Effectiveness in Neuropathies Associated with Painful Small Fiber Neuropathy.”
There are many references to research studies on topics like Gabapentin, TENS Units, tricyclic antidepressants, laser therapy, etc. Check it out by searching by topic you are interested in.
Funding Opportunity
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| Amazon donates 0.5% of the price of eligible purchases.Shop at smile.amazon.com and we’ll donate to your favorite charitable organizat. Shop at smile.amazon.com and we’ll donate to your favorite charitable organization, at no cost to you. |
Member, Ruth Fishback, recently emailed Steve Klitzman to alert him to a possible new PN funding source. She explained that Amazon donates 0.5% of all eligible purchases to a charitable organization of the shopper’s choice. She has chosen The Foundation for Peripheral Neuropathy as her charity. To date, the Foundation has received $2,422.05 just by people designating them. It’s simple to sign up, at no cost to you, at smile.amazon.com.
At this time, the DCPN Support Group is not eligible because we are not yet a 501c3 organization. If you would like to help with the application for non-profit status, please contact us at general@dcpnsupport.org
Next Meeting
Our next DCPN Support Group meeting will be on Sat. April 3, 2-4 pm. Our guest speaker will be Stanley Kim. He is CEO of WinSanTor, a private Canadian-American drug research company. Kim is doing research currently on Stage II clinical studies on new drugs to regenerate some nerve cells of people with PN from type two diabetes and chemotherapy. Their earlier animal studies were successful, and they hope to move into stage III clinical testing of humans by the end of this year. They are trying to get fast-track FDA approval for distribution and use in 2022. A Zoom invite will be sent out on the Monday prior to the meeting (March 29).