Home Forums Website Message for Senator Tim Kaine

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  • #18092
    Judson Vaughn
    Keymaster

    Dear Senator Kaine,
    Thank you so much for your bill concerning long COVID. The tingling you discussed is something I’ve experienced as well, not because of long COVID but because of a condition called Peripheral Neuropathy (PN), which is woefully under-researched and affects ~30 million people in the U.S. It has no cure. I volunteer with an organization called the Peripheral Neuropathy Support Network, which has a directory of resources you can find here: https://pnsnetwork.org/resource-flashcards-table-of-contents/ for your own use. If there’s anything you could do to promote PN research, we would really appreciate it. A true advocate is something we have lacked for decades; we in the PN community would be so grateful for your support.

    #18190
    Pat Gualtieri
    Moderator

    Thank you, Diva, for this excellent draft. We can each personalize it and send it to Senator Kaine – and check the box asking for his response,

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