Ehlers-Danlos Syndrome

What is it?

  • Ehlers-Danlos Syndrome is a group of genetic disorders that generally weaken connective tissue
  • EDS can lead to hypermobile joints / joint pain, fragile skin, and lasting bruises and scars
  • Both tissue and nerve injury are common in people with EDS, leading to chronic pain
  • There is no cure for EDS, but chronic pain can be mitigated with physical therapy and possible surgery

How is it diagnosed?

  • Diagnoses for Ehlers-Danlos Syndrome involve genetic tests for certain types of EDS
  • A family history of EDS and common symptoms (joint hypermobility, fragile skin, etc.) are generally enough to make a diagnosis of EDS
  • Many common variations of EDS can remain undetected during genetic testing
  • There are many types of EDS, each of which have their own symptoms and severities – treatment plans for one person may not work for another

If you want to learn more, click on the links below that we used to get our information.

Here are some useful webinars and presentations about neuropathy / Ehlers-Danlos

  • This section is empty for now, but if you come across anything useful, please let us know!

Stories

Read personal stories about people’s experiences with Ehlers-Danlos Syndromes

Here are some useful podcasts we have come across.

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