14:09:31 From Pat Gualtieri To Everyone:
The Grieving Brain by Mary-Frances O’Connor
14:11:36 From Pat Gualtieri To Everyone:
Anxiety and Depression Association of America
14:15:12 From Glenn Ribotsky To Everyone:
Well, OOP AACK!
14:24:43 From Pat Gualtieri To Everyone:
The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel van der Kolk
14:29:07 From Shana Phelps To Everyone:
Paced breathing, which Anne just led us through, has a variety of styles.
We just did what’s referred to as “Triangle Breathing” – inhaling, holding, and exhaling in equal amounts of time. There’s also square breathing, “3-4-5” breathing, and more 🙂
14:33:19 From Pat Gualtieri To Everyone:
Volunteermatch.org
14:35:21 From Pat Gualtieri To Everyone:
Centerforspiritualityinnature.org
14:37:07 From Pat Gualtieri To Everyone:
Insight Timer app – free meditation app
14:41:07 From Pat Gualtieri To Everyone:
National Alliance for Mental Illness (Support for others experiencing grief)
14:48:21 From Pat Gualtieri To Everyone:
101 Ways to Be Less Stressed by Dr. Caroline Leaf
14:49:05 From R To Peripheral Neuropathy Support Network(Privately):
I got bumped off of zoom again.
14:49:49 From Peripheral Neuropathy Support Network To Rebecca(Privately):
“I have 5 minutes for a vent session.” How does that work?
14:50:05 From Pat Gualtieri To Everyone:
Self Compassion: The Proven Power of Being Kind to Yourself by Kristin Neff
14:58:43 From Shana Phelps To Everyone:
If you can’t stand up, there are forms of chair yoga as well. If you can’t travel or afford a place, there are free videos on YouTube. 🙂
15:01:21 From Shana Phelps To Everyone:
Community Resource Centers, such as your village or township hall, or a local nonprofit, may also be able to provide suggestions for support groups, as well.
15:04:32 From Pat Gualtieri To Everyone:
The Happiness Trap: How to Stop Struggling and Start Living by Russ Harria
15:11:20 From Shana Phelps To Everyone:
“Hey, time’s up. Thank you for venting to me. (recount something they talked about)”
15:12:30 From Peripheral Neuropathy Support Network To Everyone:
R, I see you are getting on and off. When is the last time you updated your Zoom software?
15:13:16 From Glenn Ribotsky To Everyone:
There is the school of thought that ALL of us have some degree of PTSD, as a life without trauma is virtually impossible. Our resiliencies, though, vary considerably.
15:14:00 From AS To Everyone:
What is the difference between venting and establishing a counseling opportunity? How do you do that?
15:14:12 From Glenn Ribotsky To Everyone:
Zoom keeps updating its programs seemingly every ten minutes–every time I go on these days things seem to glitch.
15:14:14 From Shana Phelps To Everyone:
One of the things I was taught in therapy was that shame feeds in isolation. Just saying “Hey, I’m feeling some shame right now”, even just to yourself, but verbalizing it out loud, has been shown to help quite a bit.
15:15:13 From Glenn Ribotsky To Everyone:
Reacted to “One of the things I …” with 👍🏼
15:17:51 From Peripheral Neuropathy Support Network To Everyone:
Set boundaries.
15:18:01 From Shana Phelps To Everyone:
Reacted to “Set boundaries.” with ⬆️
15:18:27 From MJE To Everyone:
The power of saying NO is very important in setting boundaries
15:22:22 From Glenn Ribotsky To Everyone:
Modern Western Civilization has certainly emphasized individual happiness in ways that are unusual in human history–most societies have been more collective and have not had individual happiness as a primary goal. So perhaps our expectations are too high.
15:22:40 From Pat Gualtieri To Everyone:
The Power of Meaning: Crafting a Life That Matters by Emily Smith
15:27:21 From ST To Everyone:
A comment about when people vent without warning…
15:29:59 From Glenn Ribotsky To Everyone:
It’s certainly true that more people have more options for “happiness” than ever before, but I suspect for most people it’s still very, very hard to realize. Maybe if you’re Warren Buffet.
15:30:37 From Shana Phelps To Everyone:
“Hey, before you vent towards me, you need to ask me first. I need a moment to prepare and to actively listen. (tell her how you felt)”
15:33:27 From Shana Phelps To Everyone:
Thank you 🙂
15:44:22 From Shana Phelps To
Everyone:
WNA – December 9th (second saturday)
December 20th (autoimmune group – must email for invite)
15:45:11 From Glenn Ribotsky To Everyone:
More information on WNA groups, webinars, etc. at pnhelp.org
15:50:08 From Shana Phelps To Everyone:
I do some bodyweight weight lifting exercises lying down 😄
15:53:18 From Rebecca To Everyone:
Cataract surgery is usually one eye at a time. Second eye will be done later.
15:58:47 From Shana Phelps To Everyone:
Highly recommend that video! (Mobility City)
15:59:33 From Shana Phelps To Everyone:
Pat – the Sit to Stand floor to ceiling pole 🙂
16:00:31 From Shana Phelps To Everyone:
Sofas that tilt to help you get out of them easier
Tons of different mobility aids exist - try different things, see what works for you :)
A lot of those assistive aid stores are also listed under insurance as "DME" or "durable medical equipment" suppliers16:03:20 From S To Everyone:
I would like to say thank you to Joanne —Susan
16:06:37 From Pat Gualtieri To Peripheral Neuropathy Support Network(Privately):
Mobility City
5586 General
Washington Dr.
Alexandria, VA 22312
703-772-5030
EMAIL: alexandriava@mobilitycity.com
16:09:32 From Samantha Fields To Everyone:
I’m not seeing the store info/video in the chat.
16:10:17 From Peripheral Neuropathy Support Network To Everyone:
Here is the video tour of the store Mobility City.
https://www.youtube.com/watch?v=0C9Aq1_oh0o&t=2s
16:10:24 From SF To Everyone:
Reacted to “Here is the video to…” with 👍
Thank you!16:15:06 From Shana Phelps To Everyone:
Usually the suggestion is try PT first, then consider surgery, and it’s rarely, if ever, suggested to do anything bilaterally (both knees for example – eek.)
16:18:23 From Shana Phelps To Everyone:
Best of luck, Mike!
16:20:21 From Shana Phelps To Everyone:
To your point earlier, Peter – autonomic neuropathy can cause cardiac problems that are deadly, too. So many different complications of neuropathy can be deadly, but it’s not technically/necessarily the neuropathy itself in most of the cases where people say “neuropathy isn’t deadly”
16:44:34 From Shana Phelps To Everyone:
Linda Petiot/CNA’s website is honestly amazing. Gold standard in terms of accessibility, social media, etc.